Communication with the society will be developed in a careful way. The public must not be misled to believe that discoveries may be useful immediately. Workshops on communication and bioethics will lead to strategies and policy documents.

The Bioethics working group chaired by Professor Niels Lynöe first met in October 2006. Workshops on communication and bioethics continued during 2007 and 2008.


Mats G Hansson, Professor in Biomedical Ethics at Uppsala University and previous member of the LifeGene Steering committee:


"In a fundamental way all medical research is based on the general public's confidence. It is extremely important that our research is reliable, open and that we follow common law as well as strict ethical rules.

Both Swedish and international studies indicate that the general public is more positive towards genetic medical research than to genetic research on plants and animals. And this seems to be valid for both academic and commercial research.

Ethical issues are even more important in such a huge project as LifeGene. The study participants must feel assured that our research is efficient and that society will gain from the studies.

The information collected must be handled in such a way that no unauthorized persons can gain access to the data. This will be no problem as we have secure routines and also long experience of managing confidential material in e.g. European cancer studies.

It is also very important that we carefully handle the interests of persons who hesitate to engage in LifeGene. If someone wants to leave the project, this must be possible. Participation is completely voluntarily," Professor Hansson ends.


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Read our Ethics Policy

LifeGene Ethics Policy (pdf)
Page updated by: LifeGene 2009-10-23
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